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ORA Reporter


Enbrel Crisis Deepens


Although the new biological TNF-inhibitors have been extremely effective for Rheumatoid Arthritis patients, these new treatments bring new and unexpected problems.

Production Shortages Not only have patients requesting Enbrel treatment been placed on a waiting list that is now five months long, but established patients are running out of medication. Industry sources have said as many as 50% of established patients will experience medication delays and patients on the waiting list will not receive Enbrel until the end of the year. ORA (and the ACR) are attempting to obtain further information on the nature of the shortage and on how the remaining medication is being distributed. “Our patients are feeling deserted and I feel helpless” said one ORA physician. “I’m putting patients back on corticosteroids who have been off cortisone for the last two years.” Our ORAonline.org website message board will keep you informed on any policy changes and updates. Hopefully the medication delays will end soon.

Canadian Rheumatology Association Meeting
by Elizabeth A. Tindall, MD

The annual Canadian Rheumatology Association meeting was held at Chateau Lake Louise in February 2002. The meetings consisted of didactic sessions, poster and plenary presentations as well as business meetings and pharmaceutical-sponsored symposia. I presented the ACR manpower and training projections to the group and attended their Board of Directors meeting, business meeting and Fellow presentations. There are certain similarities between Canada and the US with respect to low numbers of trainees and rheumatologists. Canada has approximately 270 rheumatologists for a population roughly the size of California, 32 million residents.

As far as recruiting trainees, Canada has an additional burden for rheumatologists in that many are forced to take general internal medicine call plus rheumatology call. In a survey from November 2001, 143 (270 members) CRA members answered a series of questions related to their call schedules. Seventy-eight percent of those respondents took “Rheumatology” call and twenty-nine percent took “Internal Medicine” call. Of those who participated in IM call, it was compulsory for 41% and by choice for 30 %. Rheumatologists who refused to take IM call were not allowed hospital staff privileges nor could they access the laboratory, radiology, outpatient or inpatient facilities of the local hospital for their patients. Canada’s practicing rheumatologists also face problems with severely restricted drug formularies and access to new therapies. In general, Canada is two years behind the US in drug approvals. Each Province has it’s own formulary and requirements for prior authorization of medications.

The Canadian Arthritis Bill of Rights was co-sponsored and endorsed by the Canadian Rheumatology Association, the Arthritis Society (www.arthritis.ca) and seventeen other “arthritis” oriented national groups. These groups include orthopedic surgeons, occupational therapists and patient organizations. It states the significant breakthrough in treatments for musculoskeletal diseases and the need for rheumatology patients to have access to these newer medications. In addition, the document lists the responsibilities that patients have in participating in their own health care. ORA reviewed this document and revised it to reflect the Oregon perspective. 

On April 3, 2002, the Canadian Rheumatology Association (www.cra-scr.ca) released their Position Statement on the Use of Biologic Therapies for Rheumatoid Arthritis stating that Infliximab and Etanercept “offer significant benefit over conventional therapies and…it would be unethical to deny them to appropriate patients due to economic considerations.” Only two Provinces have allowed Anti-TNF therapies on their formulary; Saskatchewan with both agents and Ontario with restricted access. Quebec has refused to allow either drug on its formulary. 

Just as ORA is adopting the Canadian Arthritis Bill of Rights, our organization may wish to develop a similar position statements for Biologic Therapies and COX-2 NSAIDs. For those ORA members who would like to participate in developing these position statements, please contact Cody Wasner.

NSAID WARS: Patients Suffer Collateral Damage
Medford: According to the Medford arthritis group, a new hospital pharmacy incentive program has been installed at both Medford hospitals over the protests of the group. Merck is offering the hospitals Vioxx at $0.18 per tablet, one tenth the cost MORE>>

Alliance Physicians at Work, In and Out of State
In our continuing effort to educate health care purchasers, Dr H. Walter Emori (ORA Board of Directors) participated in an outreach effort in Pasadena in March. Speaking to a labor union audience, he discussed the importance of early diagnosis, arthritis in the workplace, and treatment MORE>>

Portland Rheumatologist Becomes ORA Member Born in Malaysia, Dr Wai L. Lee is a physician at the Providence Portland Arthritis Center and one of the newest members of ORA. Dr Lee studied Chemistry MORE>>

Health Plans Institute High Co-Pay for Specialist Care
This month the American Medical News reported a “tiered co-pay” concept recently instituted in several Massachusetts and California health plans such as PacifiCare and Blue Shield. This system establishes higher co-pay rates for certain hospitals and specialist MORE>>

David Dryland in Southern Oregon Practice
Dr David Dryland, one of the newest members of ORA, told us that he moved to southern Oregon after spending most of his life in New York and Massachusetts “because of the way it looked on the map.” MORE>>
     

Second Annual ORA Meeting Follow-UP
There were 44 attendees at ORA’s second annual meeting in Portland at the Downtown Embassy Suites in February. Subjects of the business meeting included the importance of physician/ member cooperation, the ongoing Arthritis package project, and MORE>>

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